I really can't act

Chapter 391 Medicine God ([-])

Both of them stayed.

Dr. Fan smiled bitterly: "You are surprised, right? I am in this line of work, and I know the cost of drug research and development... But I was surprised. I didn't expect it to be so expensive. What you are hearing now is probably the most expensive drug in the world. .”

"Furthermore, the families that can use it in China are probably even rarer. At least four mountains have to be climbed..."

Fang Yi asked: "Which four mountains?"

"First, the pharmaceutical company submitted to the State Drug Administration for review; second, passed the approval of the State Drug Administration and was approved for marketing; third, it was re-priced in the country; fourth, it was included in the domestic medical insurance."

Fang Yi and Liu Tianxian looked at each other, and the latter said: "Even if there are four big mountains, they can always be overcome gradually, and the price of expensive medicines may come down in a few years, and then they can be really benefit those patients."

She looked at Fang Yi: "If the documentary we make is meaningful, then this is also one of the meanings of the documentary."

However, Dr. Fan shook his head: "Things are not that simple. Most of what you said is correct, except that you didn't take it into account...and this is enough to overturn all the previous meanings."

The two stopped talking, waiting for Dr. Fan to explain.

Dr. Fan: "Have you heard of ALS before?"

Naturally there is not.

"The incidence of this disease is one in 500 to one in 3. In China, there are about [-] newly recorded patients with ALS every year. So far A total of more than [-] people. Other potential patients were not identified for various reasons, or passed away silently before they were identified."

"Therefore, not many pharmaceutical companies will conduct research and development for this disease, and they will not make much money at all. Patients are also naturally impossible to be cured - the premise for them to be cured is that there are enough patients to share the cost together, unfortunately In fact they are a super minority."

Liu Tianxian asked: "Didn't you just say that there is a 300 million special medicine?"

"Yes, 350 million," he emphasized the number "fifty", because "fifty" is also a great number for ordinary people.

"—So, this medicine has no practical significance, so this disease is terminally ill."

Fang Yi: "I would like to know, in the most extreme case...for example, if all the registered patients with ALS in the world buy the special medicine you mentioned, what price will it be?"

Doctor Fan stretched out his finger to gesture.

is an eight.

"Eighty thousand?"

"80."

Then...it really doesn't make any sense.

Because the assumption that all patients buy is in itself impossible.

It's a bit like the trolley problem, where there are a thousand people on one side and one person on the other, the unprovoked disease is a runaway train, and you have to choose whether the train hits a group of people or kills one person.

As an individual, you can not make choices, you can escape, you can refute the value of that person, and say some correct nonsense-because the value of everyone is indeed worthy of respect.

That's right.

But organizations cannot avoid making choices, and they will only choose to bump into one person if they make [-] choices.

Fang Yi became interested in this "dilemma", and then spent more time learning about such specific medicines.

With the help of the organization, he quickly collected information, which was more thorough than what Dr. Fan dictated to him.

Zolgensma is a specific drug. Yes, it works well with gene therapy, but it is still in the laboratory stage and has little commercial value.

350 million is the price of a tube of injection, what about the before and after care and care?

Could it be that after an injection, you get up and go shopping for groceries?

350 million is just the ticket.

Now there is another specific drug nusinersen, which is called nusinersen sodium in Chinese.

Its effect is not as obvious as that of Zolgensma, but it can also alleviate the patient's symptoms, especially for children under the age of two. Under good conditions, it can make the child basically normal after entering adolescence and get rid of the suffering of the disease.

Moreover, its price is very "low".

In some developed countries, it is already planned to include Nosinagen Sodium in the medical insurance list.For example, in the list of the Australian Pharmaceutical Benefits Plan, the initial price of Nosinagen sodium is 41.3 Australian dollars, which is equivalent to 185 yuan per bottle, but the actual purchase price is 11 Australian dollars, which is equivalent to 49 yuan.

The reason why such a huge subsidy can be provided is that there are only a few hundred patients with ALS in Australia, which is equivalent to the government paying for the treatment of these people.

Even so, the Australian government is only responsible for children under the age of two. If the child does not get better after this age, it is the kind of situation that needs to be injected for life, and the patient can only hope that he has enough money.

As far as the current domestic economic development is concerned, it is impossible for Nosinagen Sodium to enter the medical insurance.

The medical insurance pool is limited, and it is impossible to give up a thousand other people in order to save one person.

So, can individuals purchase specific commercial insurance?

There were indeed American companies who did it before, but as a result, a bunch of unregistered patients suddenly appeared to apply for the insurance, which made the total compensation amount quickly penetrate the insurance pool. Since then, no insurance company has dared to provide such insurance.

This is indeed an incurable disease, and all hope for it is almost equal to zero.

The discussion on the topic of "gradual frostbite" was still going on until Fang Yi returned to the capital.

As a director, he keenly grasped that this may be a disease with dramatic power, and if he looks at it two or three years later, it may be a good adaptation of the film.

Liu Tianxian gave him an idea: "For example, take a picture of a person suffering from ALS, from the whole process of surviving to leaving."

He vetoed: "There is no story."

Liu Tianxian: "What kind of story can this disease have? If there is a day when it is adapted, it should only be aimed at winning awards. No one will watch this kind of film."

Fang Yi shook his head, "It's human-made. If there are factors that attract people to watch, people will naturally watch it."

Feeling his seriousness, Liu Tianxian said in amazement, "You really want to shoot, right?"

"No, not now."

------

Guo Fan, the deputy director of "Return to 17", after dealing with a lot of chores, made an appointment with Fang Yi to report.The weather in the capital was very good that day, and it seemed like his future. The sky was clear and blue, stretching as far as the eye could see.

He stood under the building rented by the studio for a while, came up from the underground garage, and met Fang Yi's luxurious car Rolls Royce.

He circled the glass car logo a few times.

"Can he replace him?"

Or "A man should be like this?"

Right now, Guo Fan dare not say a word, but he still thought about it in his dreams.

(End of this chapter)